UK campaigners protesting for access to the Orkambi in 2017Facundo Arrizabalaga/EPA/Shutterstock By Clare Wilson“She’s our child, nothing else matters – I’d lose my house before I take her off the treatment,” says Nina White from Kent, mum of seven-year-old Beatrice. Beatrice has cystic fibrosis, a genetic condition causing progressive worsening of lung function, which is…